Showing posts with label family. Show all posts
Showing posts with label family. Show all posts

Saturday, February 21, 2015

The Legend, The Myth, The Man: For My Father

On February 9th, 2015, my beloved father passed away unexpectedly. He was a deeply spiritual person whose awesome, incomparable influence is perhaps most responsible for my own spiritual convictions, as illustrated in my most recent post to this blog, over four months ago. I am not yet ready to put together and present the comprehensive tribute to my father that he so thoroughly deserves, nor to detail how this event has reshaped the rest of my life. And so instead I offer for all of your reading the Words of Remembrance that I spoke at his funeral on February 17th, 2015. I believe he helped me to write these words. I KNOW he helped me to speak them. 

And so I say to him, here and now, "I Thank You" and "I Love You".




To Jennifer and I, he was “Dad”. To all of you he was “Bob”, “Bobby”, “Uncle Bobby”, “Uncle Bob”, and “R.W.”. But despite all of the different hats he wore, we all knew the same man. Whether he had nothing or had it all, whether he was a child or an adult, whether before or after fatherhood changed his life. At every age and in every context, we all knew the same towering, iconic figure who had the strength of a legend, the integrity of a hero, and the heart of an angel.


Our Dad’s larger-than-life stature was genuine, but he was, like one of his heroes, John Wayne, truly a gentle giant. Underneath his powerful presence and brilliant wit was the precocious child who evolved without growing old. He never mellowed with age, and never lost the twinkle in his eyes that fueled a self-described “insatiable appetite for knowledge”. He devoured information from books, TV, and the internet, storing it in an extraordinary brain that never, ever lost its edge.


To everyone who knew him, our Dad was a living legend. But our Dad was also a profoundly sensitive human being. He always looked up with reverence to his sisters, Barbara and Diane, and viewed all of their children, and our Mother’s nieces and nephews, as his second children. He was a man of deep faith who neither doubted nor downplayed the role that angels played in guiding and protecting he and his loved ones. Chief among these guardian angels was my father’s father, Robert E. Jeffrey, whose name he gave me the honor of carrying. Jennifer and I were not fortunate enough to know our grandfather in life, but we grew up with his portrait watching over us everywhere we lived. And his presence was ever felt through our father’s love of him, and our father’s incurable sadness that his father passed away before his children were born. Jennifer and I now know that sadness, too. But we take our greatest comfort in knowing our Dad is now among the many angels who watched over him, including his Dad.


Dad provided counsel to countless family, friends, and colleagues, and was a natural mentor to the many, many people who looked up to him at every age and facet of life. He was the least judgmental man I have ever known, living by his own, defining motto: “I deal them in before I deal them out.” He believed in equality above all other principles, and my sister and I are blessed to have had a father who was truly and utterly devoid of prejudice. He loved nothing more than sharing happiness with others. He was an individual of boundless generosity who never felt more pride than when someone told him how comfortable they felt around him. Somehow our Dad was always surprised by how truly loved he was. But as with everything else in his life, he earned it. He earned people’s admiration. He earned people’s respect. And he earned his truly iconic reputation.


Our Dad was at his happiest when with Jennifer and I and our Mom, his soul mate and wife of 42 years. Our mother was his muse, the source of his strength, and the love of his life. Theirs is a love story that goes on eternally as he and our Mom continue to get us through this now. Our Dad raised Jennifer and I to only ever be ourselves, and provided unending support and encouragement to follow our dreams. We always felt loved and accepted, because we were.


Jennifer and our Mom and I have felt our Dad’s presence wrapped around us since the the day his journey here ended. And so on behalf of all four of us, I offer my condolences to all of you who loved him, for there are so very many people in this room for whom the loss is no less devastating than it is to us. I know our father is honored and amazed by not only the love and celebration of life, but by the wave of compassion and breathtaking generosity of so many people bringing comfort to our mother and Jennifer and I. We are overcome with gratitude to all of you, and so is our Dad.




Saturday, March 29, 2014

I Honestly Know Me: An Evaluation Of An Evaluation



This is a most unusual post. It does not deal with subject matter I normally talk about on this blog, or with anyone outside of my partner, my doctor, and my immediate family. This is my first post about my firm belief that I am an Aspergian (one with Asperger's Syndrome), and the devastating consequences that have resulted from my failing to realize this until well into my thirties. I can only imagine how many millions of people are struggling in their lives, in ways they can neither understand nor express, because they have no idea that they, too, are on the autistic spectrum. This first post is about the role that cultural stereotypes and my own constructed identity have played in making a diagnosis more difficult than I had expected. If not for the discovery of countless personal testimonials in books or online, I might still doubt myself about who I am and what it is that I am dealing with. Based on incredible feedback generated by past posts, I suspect many people out there are facing the same exact challenges that I am, and for the same exact reasons. And I hope that sharing my experiences may be beneficial to any of them who read this.


Part 1: August 29th, 2013

For the month leading up to the appointment, I was under the impression I would be undergoing a daylong series of neurological tests to determine if I, my family, and my referring physician were correct in the assumption that I have Asperger's Syndrome. I was so wrought with anxiety about what these tests would entail and how I would fare under them that I could not sleep for the two nights prior to what turned out to be a forty minute interview.

The appointment began at 8:30 AM. The neurologist came out to the waiting room to call me into an office where the evaluation began with a question along the lines of "so what brings you here today?". The neurologist was polite, but not especially friendly, with voice and body language suggesting to me that the neurologist felt I did not belong there and that this was a pointless exercise. Or, perhaps, that said neurologist was extremely tired. I told the neurologist about my family's encouragement in my being tested and my having many traits since childhood (as corroborated by relatives and many videotapes) up to the present. I told the neurologist that I have a family history of autism as well as bipolar disorder. I noted that while I had a cursory knowledge of Asperger's, I avoided researching too much so as not to impact my evaluation. I was asked a series of questions while the neurologist looked at a computer screen and typed.

I had begun the interview by stating that it was my sister who approached me about Asperger’s Syndrome after viewing Temple Grandin's TED Talk and being reminded the whole time of me. I indicated that growing up in a protective bubble with my parents and sister in a happy but insulated childhood allowed me to feel more comfortable expressing myself but meant that it took me much longer to pick up on how people in the world outside of my home would react to such expression. I even mentioned my “Vogue Boy” video because I felt that the performance people were seeing on video did not match who I really was off camera. What countless viewers interpreted as brave was in many ways blissful ignorance. (Something closer to my personality, if still meant for audience approval, was put on display in another video shot that same summer in a “1-2-3 Video” message booth.)

When asked about my early verbal communication, I referenced having been told over the years by my mother that I had uttered my first word at three months old when I greeted a housekeeper with a "Hi". The neurologist seemed skeptical. It may have been that this seemed out of character for a child with AS. But, that morning, I read the reaction as doubt that this event had even occurred. That at three months I had begun expertly mimicking sounds in response to specific stimuli seemed buried underneath overall suspicion, which fueled my subsequent insecurity about how my answers were being received.

I made it clear that I am a recluse living with my parents in my childhood home and that I had seen hardly any other people for the last year. I stressed that crippling social anxiety, not a lack of desire to be working, was the reason why I cannot get a job and turn my life around in spite of all the people who look at me and see nothing more than a typical “loser” stereotype. When asked about my sleeping schedule, I revealed with my trademark New England/Catholic guilt/shame that I am most inclined to go to sleep around 5 AM and wake up around 2 PM. This counters society's expectations of "normal", and I've spent two decades trying to conform, but it has been my natural tendency since puberty kicked into high gear at the age of thirteen. I didn't get a verbal response. But the neurologist's non-verbal response seemed to me, once again, critical and vaguely judgmental.

The most surprising interaction came about when the neurologist asked me if I dated or had girlfriends in high school. I told the neurologist that I’m gay, and that I knew this back then but was not out at the time. I told the neurologist that I did not cover this up by dating females, and emphasized that I was adamant about not leading girls on after a close female friend had had feelings for me which I could not reciprocate at a time when I could not be honest as to why. While typing, the neurologist stated, in regards to my being gay: “it was pretty obvious, but I have to ask”. At the time, I laughed, as I did not interpret it as hate speech. In hindsight, I feel this was part of an overall sense of dismissiveness that permeated the reactions to my answers.

Asked about my ability to read other people being angry or upset, I noted that my tendency was the extreme opposite: I always fear having just hurt people and I always think people are left upset. I begin to question every move I've made and everything I've said and in what way I could have hurt someone enough with what I've said or done to potentially destroy them. Someone telling me they love me one minute doesn't mean I won't be convinced I have not earned their hate the next minute, hence a perennial need for assurance. I don't know how much of this I conveyed in the office because what was on my mind and how it came out seems to have been somewhat disconnected. But I'd like to think I made it clear that my empathy, while abundant rather than lacking, is still extremely abnormal.

After giving my answers, I looked at my hands or looked at the wall or at the floor while the doctor looked at the screen and typed in silence. All of the neurologist's questions were met with honest answers. Most of these honest answers would indicate AS. But these were ultimately dismissed on the basis that: a.) I get along well with my immediate family, b.) I care intensely and obsessively about not hurting other people's feelings, and c.) "you seem amiable to me". According to the neurologist, my concern for the feelings of others indicated I did not have Asperger’s Syndrome, as “people with Asperger’s don’t really care if other people are happy”. The neurologist felt that my being close to my sister indicated I did not have Asperger’s Syndrome since the difficulty that people with AS have interacting with other people begins at home, and thus it would be unlikely someone with Asperger's would get along with family members.

The neurologist felt that simple therapy would treat what the neurologist perceived as severe social anxiety disorder, which had not only impacted my ability to pursue a job but also my ability to keep one for more than a matter of weeks or months. The neurologist felt that my experiences being a gay teenager at an all boys’ Catholic school in the 1990s could be largely responsible. The neurologist suggested that I was likely still dealing with unresolved anxiety from my semi-closeted high school years.

I reiterated something that I brought up early on in the evaluation, which is that I had been rapidly flapping my hands in states of intense thought or heightened excitement ever since childhood, when I did it openly, and that this is something I constantly still do in private as an adult. In the most alarming statement of the evaluation, the neurologist offered that this, too, was directly related to my homosexuality. “Most of my gay friends use their hands a lot” was the specific response. Once again, I laughed this off. 

The neurologist followed up this summation by noting that if I wanted to I could still make an appointment to undergo four hours of neurological testing to know for sure whether or not I had Asperger’s. At that point, I was anxiety-ridden, discouraged, and in doubt of my ability to understand anything about myself. I could not wait to get out of there, so I turned down the opportunity. I accepted the diagnosis despite my misgivings, I referenced my "Vogue Boy" video (no doubt a an unconscious suggestion to reconsider the diagnosis), and cheerily said goodbye with a big smile because I was so happy to be leaving. 


Part 2: March 29th, 2014

Over six months after my evaluation, I discovered that a number of challenges faced by my partner and I are commonplace in relationships in one which one (or both) partners have AS.  I proceeded to read books and testimonials from Aspergians writing in defense of their unique emotional make-up. Learning that perhaps intense over-empathy is being mistaken as a lack of empathy in a number of Aspies seemed to hit the nail on the head: this was EXACTLY what I was trying to communicate in the office that day about my skewed emotional make-up, but sadly to no avail. Maybe some Aspies, if not most, don't care if other people are happy. But many Aspergians assert that this oversimplification does not accurately describe all people with Asperger’s, and empathetic Aspies like activist/artist Alex Plank are clearly frustrated with not being heard--or, like myself and many Aspergian females, are not being diagnosed at all. 

My going in for the evaluation in the first place was based not only on my own feelings, but also based on the opinions of my parents, my sister, and my life partner. (Subsequent research has lead me to believe that my aforementioned loved ones are themselves undiagnosed Aspergians, hence the surprising closeness with my family.) One month before the evaluation, I had been referred to the neurologist by my physician, who “would not be surprised” if I was found to have Asperger’s Syndrome  based on knowing me through a handful of appointments over seven months. My physician also suspected that if I had AS, it would likely be a “mild” case. Subsequently, my fear about being evaluated was that my desire to please and my aptitude for unconsciously performing would suggest an outgoing personality and belie the fact that said “personality” is, in fact, a lifelong front. Sadly, my fear was realized. 

For seven months now, that morning of August 29th, 2013 has been a frequent source of pain and regret. I spent the preceding weeks anticipating a definitive neurological confirmation that would allow me to approach my life in a positive new way. I was given a diagnosis based on an interview, leading me to believe that I had apparently misunderstood myself for my entire life. I wore a Michael Jackson t-shirt into the office that day, because it was his birthday, or “Michael Jackson Day”, as I call it. Michael has been a guiding influence on me since my birth, and only more so since his death, and going in I assumed he was on the autistic spectrum, too. When I was told Aspies don't care about the happiness of others, I realized he couldn’t be one either. He, too, was obsessed with other peoples' happiness, and like myself, his isolated and intensely creative life was fueled by this aim to please, from his early success as an ultra-precocious child through his troubled adulthood.

I emphasized where I was at in my life, and not without a great deal of shame. I was thirty one, living with my parents, and had become a recluse. I was too anxious to drive a car or see people, and thus incapable of interviewing for a job or shopping around for a suitable therapist. I was spending my days writing by myself and my nights watching movies by myself. It is an endless cycle of solitude that is usually only broken by extended video chats with my partner, whom I feel is a fellow "Aspie" and who is also presently living with his family in a nearly identical situation. I have since learned that my present life, as described to the neurologist, is sadly not an unfamiliar manifestation of undiagnosed Asperger's Syndrome. I am, like so many other undiagnosed adults, suffering the inevitable state of disconnection and uncertainty that comes with not knowing "what's wrong with me" in relation to the rest of the human race. If I had realized just how NOT alone I was, and just how RIGHT I was to be there that day, I would never have turned down the opportunity to undergo the very testing I thought I was showing up for in the first place. I went in for an evaluation based on traits that I saw in myself for years prior to the low point that my life had sunk to. I had no idea that day that said low point is further indication that I am not only correct in my assumption, but would have benefited immeasurably from having been diagnosed years earlier. And I would give anything to have known all of this last August. 

Prior to the evaluation, I was shocked and relieved to learn that rapidly flapping my hands while in a state of excitement brought about by intense inwardness--something which consistently attracted amusement throughout childhood before becoming a hidden, embarrassing trait ever since--is a defining trait of individuals on the autistic spectrum. But I did not know the word for this, “stimming”, until after my evaluation. I suspect that my use of grandiose hand gestures while explaining myself, rather than the stimming that I was attempting to explain, is what the neurologist reacted to. Several days later, my sister sent me a YouTube video of a young boy with Asperger’s whose mother asked him to demonstrate and explain his stimming. His behavior, his demeanor, and his description of his internal experience while stimming illustrated everything I had been attempting to communicate in the office and apparently could not. I saw myself in this child, as did my sister. Subsequently, the mortified reaction of everyone with whom I shared the doctor's "most of my gay friends use their hands a lot" statement preempted my own shock in being given such a stereotype-based response to such an incredibly common behavior of individuals on the autistic spectrum.




I would like to stress that I do not believe that the neurologist I spoke with was motivated by any homophobic inclination. With that said, I feel that my being gay was way too prominent an issue in this evaluation. Addressing my sexuality as “pretty obvious” early on and later writing off my stimming as behavior not unlike “most of my gay friends” was troubling, to me and to many of my loved ones. I have always struggled with social relationships, in predominantly gay as well as predominantly straight environments. Thus I do not agree with the theory that my problems today are directly rooted in my Catholic high school years, particularly not after fifteen subsequent years of being relentlessly open about my sexuality and in a decade-long relationship with another man. Two of my oldest friends, neither of whom I see very often but both of whom have been in my life since our youth, both separately joked that I had gone in for Asperger’s testing and been diagnosed as gay.


Based on the neurologist’s facial expressions and body language, I interpreted skepticism, condescension, and general irritation. I took the neurologist's "so what brings you here today?" as an implication that this was an audition as much as an evaluation. I proceeded accordingly, answering the questions and reading the signs sent by someone who struck me as going down a checklist rather than exhibiting concern for what I was saying and where it was coming from. Throughout the evaluation, I felt that the neurologist was looking at me as though I was looking at Asperger's as a scapegoat for my neurosis. I may very well have been correct in this assumption. Or I may very well have entirely misread the non-verbal cues before me. If indeed I completely misread the neurologist, then I feel all the more convinced that I have Asperger's. But regardless of the accuracy of my interpretation, by the time the forty minutes was up, I felt browbeaten and stripped of any sense of self beyond being gay and seemingly “amiable”. I also felt like such a neurotic stereotype that I turned down the tests I had wanted to have done so as to avoid further embarrassing myself in the eyes of the neurologist. 

I know that I have Asperger’s Syndrome. This is based not only on the overwhelming extent to which I can personally identify with the experiences of diagnosed individuals, but also based on the observations and memories of people close to me whom I have knowingly or unknowingly revealed my true self to in the years between my being an ahead-of-his-years child and a what-went-wrong-with-him adult. I also know that my evaluation had a catastrophic effect on my self-esteem. I feel that a big part of my reaction in this regard was based on the fact that the evaluation seemed bound to end in dismissal from the get-go. That such focus would be placed on my sexuality suggests that perhaps my feigned demeanor had a bigger influence on my diagnosis than did my honest answers to the questions I was asked. Since that day, I have struggled to feel like myself again. But thanks to incredible blogs like SeventhVoice, communities like Alex Plank's WrongPlanet, and activists/authors like Temple Grandin, Maxine Aston, and John Elder Robison, the voices of people whose life experiences I most relate to are leading me out of the dark.

Up to now, this blog has primarily been a platform for me to worship my favorite stars, rave about my favorite movies, celebrate my favorite pop culture anniversaries, and generally indulge in my perceived narcissism--all indicators of Asperger's, I might add! Thus, you may rightfully be asking why I would suddenly feel the need to discuss extremely personal details about my mental health. And that brings me to the questions I’ve been asking myself in the days leading up to writing this post. Is it not possible that cultural stereotypes of gay men as high-strung and idol-obsessed has permeated science and medicine, and to such an extent that autism is being confused with homosexuality? Is it not possible that in the seven months since I accepted my diagnosis that numerous other LGBTQ people have accepted similar diagnoses, putting aside their self-understanding in favor of an expert opinion? And, more importantly, is it possible that doing so has lead to the same depression, anxiety, and overwhelming self-doubt that has swallowed up the last seven months of my own life? 

I have only myself to blame for letting anxiety and self-doubt hold me back from giving a “Yes” answer when offered the testing I so wanted. And so I blamed only myself for the last seven months. Now, I anxiously await the opportunity to finally undergo neurocognitive testing in July. I could not be more excited about Summer 2014, and I pray it provides the assurance and optimism I sought out in Summer 2013. In the meantime, I will fight to believe in MY understanding of myself, even if it means fighting against the real or perceived skepticism of others. I stand alongside everyone waging a war against such doubt, and will keep my comrades up to date through future posts.

Friday, November 15, 2013

Confessions '13: It Came From Religion Class


Wow, the stars truly aligned.



I was planning to finally end the five month hiatus from my blog by once again posting for "Confessions Day", the anniversary of the U.S. release of Madonna’s Confessions On A Dancefloor. Then I figured I’d give that a rest since, well, I’ve already confessed enough. Besides, I’m working on a little something for another upcoming Madonna anniversary that I thought would make a more impactful comeback post.

Alas, The Universe had something else in mind: an entry that feels like déjà vu.

Once again, I discovered a piece of thought-lost writing from my Catholic high school years: in this case, a short assignment written in a notebook for religion class. And, wouldn’t you know, it was written just a few desks away from “James”, the straight classmate whose lone year at my alma mater came to define my adolescence. So I thought I’d precede the formal relaunch of my blog by posting my irrepressibly honest fifteen year old self’s every handwritten word. Try to keep in mind, this was written by a 9th grader in love. But, also, that nearly all of it of it still applies to me today.

That, for better or for worse, is my Confession ‘13.



Bob Jeffrey
1/22/97


  1.        Learning
  2.        Family/personality
  3.        Where You Are In Faith Experience
  4.        How Is Freshman Year Going For You?
1
  1.   I’m not really a smart person. I get distracted a lot while doing my homework, and I usually take a long time because of this. I often “drift off” in class, and will sometimes start falling asleep while taking notes or listening to a lecture.
  2. I am kind of a bizarre person. I always try to reach out and help people, but I keep a lot of things “bottled up”, so it can result in a short-temper. I think I might be manic-depressive. I had a horrible experience in junior high, and I believe this brought about manic-depression. I am very sensitive and I am always worried about what other people think of me. I often make myself think that they think bad things about me, and I make myself believe I am a horrible person. I try to be as outgoing as possible, but in reality I am very shy and self-conscious. I am very close to my family.
  3. I used to go to church just about every week, but I haven’t gone in a long time. Still, I believe in God and Jesus Christ and I pray all the time about various things. Though I attend CCD, I find that I miss it often. Still, I consider myself a very religious person. 
  4. So far, freshman year is a blast! I hated junior high, and so far high school is fantastic. After my Jr. High experience, I became really shy and a loner, but I am gradually getting back to the way I used to be. I want so bad to be popular, though. I think that right now I am average. I’m not popular, but not unpopular. I have a lot of people who I consider my friends, and no one here is mean to me, that I can recall. Fortunately here there isn’t as much of a rat race. People all seem to be on the same level, like everybody here is friends with everyone else. Hope that won’t change now that I said it.


Suffice to say, the high I was on when I wrote this certainly did not last for the rest of high school, and I would never again take such an unnecessarily revealing approach to in-class assignments. Or, if I did, I blocked it out of my memory. So allow me to close by dedicating this performance of one of my favorite "Confessions" tracks to the inner fifteen year old in us all.



Saturday, March 23, 2013

Happy 40th Anniversary To Our Favorite Couple!!

In addition to being the birthday of my second favorite movie star, Joan Crawford, March 23rd is also the wedding anniversary of two of my favorite people: my Mom and Dad. There would never have been  a "Vogue Boy" video without Madonna, but I would never have been a Vogue Boy without my parents. They protected me from the very concept of intolerance throughout my childhood, and they were offscreen cheering me on while I danced. It is certainly not the only reason I am forever grateful to them. But I think this aspect of that happy moment in my childhood speaks to why I regard them as being my friends as well as my parents.



My parents are remarkably unpretentious people who instilled in me a habit (if not a superstition) of maintaining a veil of modesty between "public" and "personal". As such, I weighed whether or not to post a collection of favorite photos as I had previously done for my mother’s birthday and the anniversary of my cat Toby walking into my life. But I decided I would share a handful of treasured images, and for two reasons. First and foremost, my sister Jennifer gave us all a gift when she scanned hundreds of family photos back in 2008 for their digital preservation. This presentation is a gift we give to our parents together, for it would never have been possible had she not spent weeks finding and saving a lifetime's worth of priceless treasures. Second, my parents have been through a great deal of hardship in recent years. Like so many people around the world right now, financial struggles have tested their other relationships. When you lose a great deal of money, you find that many friends and family members suddenly stop caring. (We do, after all, live in a “what’s in it for me?” society.) You also gain a new appreciation for those loved ones who reveal that their love and compassion is in no way connected to money or materialism, a revelation that makes you love those loved ones more than you ever thought possible. It is through these eyes of love that I present these photographs, scanned by my sister and taken by many such loved ones over the course of my parents’ forty year marriage. As much as anything else, my parents have taught me that friendship is at the root of all great relationships, and most especially lifelong romance. My sister and I are more blessed than words can ever describe to be the children of our father and mother. And nothing makes us happier than knowing that, “in good times and in bad”, they always have had and always will have one another.

Possibly the most romantic ending in film history.


HAPPY ANNIVERSARY MOM AND DAD, 
WITH LOVE FROM BOTH OF US ALWAYS!!!!!!!!!!!! XOXOXOXOXO
        ROB & JEN 


















"As long as life endures, it's yours....this heart of mine." 









Thursday, January 31, 2013

My Favorite Aquarian




My Mother is not as big a movie fan as I am, for she is the type of person who always chooses the real world over the infinite alternate universes of cinema. But she only ever encouraged my movie love, bringing me to see arthouse movies in the sixth grade (per my request) and seeing Showgirls on opening night with my father (per my birthday wish) because I was too young to be admitted. She has always had faith in my dreams and always allowed me to be who I am, no matter how far-fetched or freakish or shameless I might have been labeled by the rest of the world. She has also been an endless source of optimism and support. Her openness and honesty have shaped me every day, and encouraged me to appreciate those same qualities in all people, but most especially in other strong women. Like my father, she didn’t simply “accept” me, she encouraged me to be completely myself, but never at the expense of other people's well-being. I credit whatever good karma I have to the example my parents set from day one, and I owe every happiness to their belief in my right to lead a fulfilled life. 




This is a big birthday year for my family, as my Mother, my Father, and my sister Jennifer are all celebrating milestones. And while most sons are instructed not to reveal their mother’s age, I am proud to celebrate my Mom’s 65th birthday today because it is a moment that deserves to be honored and reflected upon by the countless people whose lives she has touched since January 31st, 1948. The happiness she has brought to my father and my sister and I is beyond compare, but we are only three of the people whose love for Kathy Jeffrey is voluminous, everlasting, and earned. She is an extraordinary person who has, in turn, drawn many other extraordinary people to her. 

Above all else, I am especially thankful for that.



There is no definitive way to pay proper tribute to my amazing Mother, but I hope this collection of some of my favorite photographs can be a small sign of gratitude, a testament to how fortunate I know I am to be Her son. And now I toast "my favorite Aquarian" by dedicating this 52nd blog post to my Mother. From long before I was born up to the present (birth)day, She has been strong, passionate, understanding, funny, thoughtful, sensitive, courageous, kind, and all around just really fucking cool.

(I felt the final point was worth underlining with out-of-character profanity.;)


HAPPY BIRTHDAY MOM!!!!!!!!! 
I LOVE YOU ALWAYS!!! XOXOXOXO



    
























And now, to close, the performance that ALWAYS makes me think of my Mom.






Wednesday, January 30, 2013

"Forever Young"



Late one night in January 2008, I discovered this 1985 TV performance on YouTube. I had fallen in love with Alphaville's "Forever Young" in the late summer of 2004 when it was featured in the brilliant film Napoleon Dynamite. That same summer, Laura Branigan, whom I had loved since my days of watching the variety show Solid Gold as a child, died unexpectedly of an aneurism. My love for her music deepened in the months and years that followed her untimely passing, but it was not until five years ago that I learned that she covered "Forever Young". I still remember the first time I saw this clip. I felt as though Laura's angelic soul had guided me to it that night, when I needed it most. A part of me feels that all over again, every time I hear the song. But my most vivid memories came over the next two years, when this most haunting rendition of "Forever Young" would underscore the final days I spent with my beloved dogs, Frisky and Chloe. 




Frisky and Chloe were sisters, born the very same summer I filmed my tribute to Madonna's "Vogue", and they were a defining part of the lives of my sister and I from our childhood through our twenties. They saw us through every high and low over the span of two decades, from grade school through college and beyond. Chloe died while looking into my eyes on December 27th, 2008, and Frisky died while looking into my sister Jennifer's eyes on January 10th, 2010. Speaking as a deeply spiritual person, 2009 was a powerful chapter in my life because Frisky was here with my family while Chloe was no longer in a physical form. Throughout 2009, the last full year of Frisky's journey, I felt Chloe especially close: their bond was truly unbroken by death. Never was this more potent than on the night of September 26th, 2009, when I walked outside with Frisky in my arms, playing an MP3 of Laura Branigan's "Forever Young" on my cell phone under a Full Moon. Now, a part of me always goes back to being in that Full Moonlight every time I listen, and I am once again holding Frisky in my arms, the spirit of her sister Chloe all around us. 


In January 2013, Laura Branigan's "Forever Young" would take on another meaning for me. On January 6th, I learned that one of my dearest and most incredible friends was at the end of her life journey. Amanda was an integral part of my adolescence, an ally in junior high school who I stayed in touch with until 2012. Many of my memories of her were formed during the seventh and eighth grades, a difficult life chapter that I avoided looking back on for many years. But now I cherish those once painful memories so as to remind me of the right approach to take to truly living life...just like Amanda did. 

In the seventh grade, I was secretly coming to terms with my homosexuality while also realizing that Amanda seemed to have romantic feelings for me. I couldn't tell her why it was that I couldn't go out with her, despite how well we got along and how much I adored her. The two of us separately and collectively endured peer abuse (I loathe the term "bullying) from certain people who mocked our friendship. I'm sure some of them knew even ahead of me that I was gay, but such taunts primarily were rooted in the fact that I was extremely tall for my age while Amanda was quite short. Amanda and I never discussed anything as trivial as our height difference, but years later I learned from a mutual friend that Amanda had battled and beaten childhood cancer, and that this had presumably stunted her growth.  Looking back, I should have known by her approach to life that she was a cancer survivor. Amanda was a lot tougher than I was, and deflected the words of other people with a strength and optimism that I still hope to one day emulate. 

In junior high school, and especially the seventh grade, I was deeply sensitive to the ignorance and cruelty of classmates whose own internal suffering I would not understand until years later. And I was obsessed by a fear that I was causing Amanda more suffering than anyone else by not having for her the same feelings that she had for me. This fear dominated my thinking, yet without any cause, for Amanda never stopped smiling. Regretfully, I transferred to another school because I felt lonely and depressed and picked-on and unpopular. I thought I could hit the "Reset" button and have an entirely different teenage experience in an entirely new environment.  Amanda, on the other hand, never held grudges against those who could be so cruel: she not only forgave but ultimately became friends with the people who had once inflicted pain.

Amanda and I did not see each other very much after we went to different high schools, but thankfully America Online kept us connected for the rest of our teen years. At the start of senior year, we ended up working side-by-side at CVS, and once again I had the pleasure of seeing Amanda every day. I will never forget the night when she rang up a junior high tormentor while we were both working the cash registers. After he left, she told me how much nicer he was now. I wished I'd taken her approach to people, and to life, back when we were teenagers. Amanda weathered much more than I ever did, and yet she never let that affect her exquisuitely positive attitude. She was never blind or naive or living in a fantasy world. Her positivity was entirely by choice, and it never, ever wavered. She consciously chose to feel only love for all people. Eventually, all people loved her right back. And how rightfully so. 


Amanda's beautiful senior photo and caption in the Class of 2000 High School Yearbook.


I can't recall if I finally told Amanda I was gay shortly after I left CVS or shortly after we started college. Telling her was something I'd wanted to do for a long time, and one day I finally wrote her an email message to set the record straight--so to speak. As detailed in past blog entries, I knew all too well what it was like to be infatuated with a guy who either did not share the same feelings and/or the same sexual orientation. Inflicting that pain onto Amanda of all people was something I never ceased to be afraid of doing. I don't know if she knew I was gay by that time I finally told her, but from the reply she sent back, all the way up to the last messages we ever exchanged, it never affected our friendship one way or another. We went on to maintain communication for years by way of AIM, email, and eventually Facebook. Some time in 2004 or 2005, we ran into one another again at a grocery store in the same plaza where we'd once worked together at CVS. I remember that hug we shared and the warmth between us so vividly, and I keep remembering it all the time now because that happy moment was the last time I ever saw Amanda. 

Last May, when I posted an essay I wrote in high school about my junior high experience, there was never any mention of my friend Amanda. This was not an oversight: I removed all references to Amanda entirely from the piece I wrote at sixteen about what it was like being thirteen. I didn't want posting the full-length essay to stir up potentially painful memories of our shared experiences, not until I had given her the chance to read what I had written and to both have a conversation about it in person. Ever since I posted my "Vogue" tribute we had been planning to get together in Boston for a proper reunion. In spite of the image I have attempted to construct with my video and my blog, these last few years of my life have been wrought with different kinds of pain that have taken a physical and emotional toll on my nearest loved ones. I kept hoping this was a chapter about to end, and that once things were back on track in my life I would resume all of my dormant social activities and pick up friendships where they were left off. In spite of all my wishful thinking, said chapter has yet to end. In the midst of so much turmoil, I became intensely reclusive, but was too vain and too ashamed to let this on to all but a trusted few. Amanda was among those few. She understood where I was at, and why I was waiting for things to be better so that our catch-up in the city would be "well worth the wait". Alas, speaking in the purely physical sense, that reunion was not to be. 

Having beaten cancer as a little girl, Amanda spent a great deal of her time working with the American Cancer Society. She had a passion for helping people that was informed not only by her extraordinary soul but also by her own brave battle as a child. I naively thought she would spend the rest of her life doing so, never once thinking that the disease would come back to take her as a young adult. Just six days into 2013, I learned that Amanda was once again battling cancer, but that this battle would not be won. I subsequently spent the next several days thinking of nothing but Amanda, generating all of the energy and prayers that I could in hopes that all of the love going her way could miraculously heal her. On the night of January 9th, I learned that Amanda was in good spirits, as positive and upbeat as ever. But I also learned that she was going into a hospice the next day. In the hours that followed, I came to terms with the inevitable, and spent a great deal of time listening to music and reflecting on my memories of someone so extraordinary. Although I am a very emotional person, my emotions typically don't reveal themselves in times of sadness. I often say that I only cry in Bette Davis movies, that my appreciation of her greatest dramatic work is certainly deepened by its ability to release my own repressed emotions when I need it most. But as January 9th became January 10th, I shed many tears for the life journey that was coming to an end much, much sooner than any of us could ever have expected. In my heart, I said goodbye that night. Some twelve hours later, on a most unusually warm and sunny afternoon in January, Amanda's journey came to an end.




In the weeks since Amanda's passing, she has remained at the forefront of my mind. Memories of adolescence came back to me with almost supernatural clarity in those final days of her life, so that those experiences, once again, all seem recent. Only what I once viewed as a source of guilt or shame or sadness I now view in an entirely positive light. I look back on the times we shared together in junior high school as pure happiness, because I finally appreciate why this was Amanda's perspective all along. For years I was fixated on a fear that I had hurt Amanda more than anyone else by not feeling for her the way she felt for me, especially as we were both going through such an awkward and challenging stage together. I can finally see that she was far more content than someone as neurotic as I could ever have appreciated, least of all at thirteen. I remember seeing her one day at the start of seventh grade wearing black cowboy boots and thinking of how cool she looked, and I'm pretty sure that's the day when our friendship really began. At a school dance held in the junior high cafeteria a few weeks later, Amanda asked me to dance, and I accepted but was shy about dancing to anything but a waltz-y slow song--indeed, the carefree Vogue Boy was long gone. But Amanda had no hesitation whatsoever, and I keep smiling to myself as I remember her immediately grooving along with the song, never revealing a trace of the insecurity that I felt defined by. 

The night before Amanda's life ended, I was consumed by grief for her family. But on the night of her passing, I was consumed by positivity, thrilled by the awesome power of her incredible spirit. That night, I didn't cry. I danced. Normally when I dance in private I have a secret fear that someone is outside my window filming me. But this time I didn't feel any fear. I didn't feel anything negative at all. I was, and still am, determined to live my life as positively and as optimistically as Amanda did. She loved life, every day of it, whether good or bad or ugly or beautiful or painful or pleasurable. She faced more adversity than I ever did and she yet she was never one to complain or to expect sympathy. She may not have been tall, but she was a tower of strength. She had not one ounce of cynicism in her, and yet she was never without a sense of humor. I speak for countless lives touched when I say that I love her with all my heart. 

On the night of January 11th, I listened to "Forever Young" for the first time since Amanda's journey here came to an end. I was under the open sky on a starry night, and I wished for a shooting star to appear while I listened. When the song ended, I felt connected to Amanda despite not having seen one. I thought to myself, "I don't need to see anything to know you're near." I blew a kiss up to the sky, to a small patch of black in the center of that blanket of stars. And then a comet shot across that patch, slowly and brightly, taking my breath away. I was once again consumed by positivity, by Amanda's positivity. Now every time I drift back towards sadness, I remember that moment, and am incapable of feeling anything but gratitude and happiness. And every time I listen to Laura Branigan sing "Forever Young", Amanda is among those angels who I feel so especially near.